And once more, the internet
A. Took a holistic view of the symptoms and results.
B. Gave me a plausible, real diagnosis that I could work with.
C. Gave a clear follow up plan.
Consistently, i have been failed by doctors. Every single time.
A recurrent UTI that was actually an autoimmune disorder? - Undiagnosed for 12 years. I finally got sick of it and sat and researched on my own. Hundreds of patient experiences recounting how their doctors misdiagnosed, trivialised their experience, and prescribed antibiotics where none were needed. Literally hundreds of them! All with the same autoimmune disorder that either a doctor somewhere or the patients themselves diagnosed.
Fatigue that was unexplained - Undiagnosed for more than a decade. A full cardiac checkup later, i was told about hallucination, losing weight, and other useless suggestions. ONE patient, on a patient support group discussion board named the condition ACCURATELY. THEN, I went to a doctor and said, "Treat me for this. I am responsible for the outcomes." She did. I responded to the treatment immediately. After 10 years of being on a blood thinner with no answer other than "You are fat." OR "This happens."
And now, the same fatigue. Blood tests ordered but not considered before putting me on a "Lose weight and see" treatment. The report said - Grade 1 diastolic dysfunction. The doctor said, "Everything is fine. I can't do anything more." and refused to do further investigation on blockages, if any. My accompanying friend even said, "Some blockage will anyway be there." What they forgot to say? I am not supposed to have Grade 1 diastolic dysfunction at this age. Grok took ALL my reports - the heart, the blood work, and created a viable next step. It told me a likely diagnosis, and two follow up tests that will help me rule out the condition or confirm it. Tests that my doctor neither mentioned nor considered EVEN when i was literally asking him, "So why am I unable to exercise as i could even two weeks ago?"
A friend who says, "Why are you fussing so much over your health?"
Another adult in the house, who generally does not care, responding with, "But why would a doctor NOT give more investigation? In corporate hospitals, they are the first to investigate MORE, not less."
I don't know. I don't care. All I know is that doctors have failed me and thousands of patients like me. And the internet has not.
And this is why doctors do not have my vote. Not in the campaign against AI, not in the campaign of "Look how hard they work." They might work. They just didn't work for me. It is God's grace that i need a doctor rarely. But every single time, i have only met with trivialisation and lack of genuine listening.
And God save you if you ever tell a doctor they are fucking wrong. Because God can be wrong, but not Doc.
1 comment:
Many women want to share your venting about doctors! Are you getting appropriate treatment now that the auto-immune disease has been identified?
Post a Comment